A few months ago I started noticing a change towards me from people. As I’ve tried to figure out what the problem was, it turned out it was miscommunication between these people and I on how to deal with me being autistic.
Thankfully after discussing things with those people, things have worked themselves out for the better but it got me thinking. How does one on the spectrum learn to properly communicate their accommodations without making it sound like they are trying to change people’s behavior?
Now, I know that is a very open ended question as coming from the millennial generation, things aren’t always as easy to change as they are for the younger generations. Yes there is room for people to change in any generation, but not everyone is always going to be the same.
It makes me question, are the right people going to find me?
The truth of the matter is at some point those right people will be there. Granted I have found that with my hockey team and that has been the greatest blessing I could have ever asked for. The hockey community is a different breed of humans that I never expected to experience in my life.
Yes, that community makes a huge difference in my life and I will be forever grateful for the people I’ve met and the experiences I continue to have. The hardest part? It will always be dealing with people outside of the hockey community.
Yes I have met some amazing people, and some of those people have been fantastic at learning how to deal with me after some ups and downs. Some people, not so much. And that’s completely ok with me. The people who aren’t ok with me aren’t worth my time.
After years of dealing with jobs and others outside of just school you’d think I’d be more at ease with learning how to deal with the struggles that come with autism and dealing with others.
But at the end of the day, the older I get, the harder it actually gets to deal with society. I know not everyone will be cruel towards differences, but not everyone is the same.
Some days are going to be harder than others, and that’s normal for everyone. But for someone on the spectrum who struggles with communication and socialization, those hard days turn even harder when trying to understand why people have a hard time dealing with me.
I wish I could say things get better as you get older being autistic. But the reality is, after years of masking my true identity, it gets harder learning how to differentiate between people who genuinely care and ones who want you around.
Burnout from masking is real. Meltdowns from sensory overload are real. Autism is real.
The way a person presents themselves to not be autistic is real.
Autism is always real.
The people who know that this is the case are the ones who understand when I say that parents worry for an autistic/special needs child, no matter how old, will never fade.
But despite the struggles, there’s more to me than just autism.
I bring humor, care, a love for sports, a passion for hard work and so much more.
I know one day society will see special needs children and adults as more than just a diagnosis. I just hope that day comes sooner than later.
Until then, I will find ways to manage and hope that the right people will want me to stick around as long as they choose to keep me.